Protocol Title: Project Civic LeAdS: Enhancing Civic Engagement of Culturally and Linguistically Diverse Families and Students with Disabilities: Legislative Advocacy in Special Education
Principal Investigator: Zach Rossetti
Description of Study Population: Parents/primary caregivers of school-aged students with disabilities
Version Date: February 11, 2021
The following information is provided to inform you about the research project and your participation in it. Please read this form carefully.
The purpose of this research study is to examine the effectiveness of a civic engagement training for youth with disabilities and their parents. Participants will be in this research study for 6 hours (during the civic engagement training). The first half of the civic engagement training includes a review of Individuals with Disabilities Education Act principles with emphasis on what youth want changed in the law, and the second half focuses on legislative advocacy.
First, we will ask you a lot of questions and have you do some things. In a group, we will ask you questions about your life, and how you think or feel. We will also ask about experiences you might have had at school. Some things may be hard for you and some may be easy for you. There are no right or wrong answers. The important thing is that you do your best and have fun.
We will take breaks if you get tired, and we can take a break for a snack or to go to the bathroom. Your mom/dad will be here the whole time. They will be in the room right next door, and we can go get them at any time if we need to.
Second, we will talk about your experiences in school. This conversation will be in a group. We will do activities together and tallk. Again, there are no right or wrong answers. We want to hear what you have to say and hope you have fun.
You don't have to do these activities with us if you don't want to. It's your choice. If you don't want to do anything you can always say no. No one will get mad if you don't want to do the activities with us.We will not tell anyone you are in this study. We will put your name in very few forms and we will keep them locked. If you tell us that you may hurt yourself or others, we would tell your parents and other people so they could help you. Do you have any questions for me? If you think of any questions later, you can let me know and we can talk about it. Does this sound good? Would you like to help us do these activities today?
Audio/Video RecordingWe would like to audio/video record you during this study. If we are in-person, the focus groups will be audio recorded so we can transcribe them. The testimonials will be video recorded, and we will give you the edited videos after the training. We will display the videos on the project website. If we are not in-person both will be video recorded via Zoom.
If you are audio recorded, it will not be possible to identify you. If you are video recorded, it will be possible to identify you. We will store both of these recordings on our computer and only approved study staff will have access to the recordings. We will label these recordings with a code instead of your name. The key to the code connects your name to your recording. The researcher will keep the key to the code in a password-protected computer. Audio recordings of focus groups will be destroyed after we complete the written transcriptions.
Name of Study Participant
* must provide value
Name of Person Obtaining Assent (if someone is helping you complete this form, please write their name here)
Email or phone
* must provide value
Today D-M-Y
Which disability do you have? Mark one or more.
Please describe your disability if you checked other:
For the training, do you need accommodations?
* must provide value
Yes
No
What types of accommodations do you need?
1. In what year were you born?
1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005 2006 2007 2008 2009
2. What race/ethnicity are you? Check all that apply.
If you marked other, please explain.
Male
Female
Non-binary
Prefer to self-describe
Which area do you want to complete the training in?
* must provide value
Washington DC Illinois New Mexico Louisiana Maine South Carolina
A total score of sense of empowerment
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The average score of the sense of empowerment
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35. At what level does the federal government currently pay for the Individuals with Disabilities Education Act (IDEA)?
5%
12%
40%
75%
Question 1- correct or incorrect?
1 point = correct
0 point = incorrect
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36. At the federal level, what are all of your choices to resolve conflicts?
Due process and filing a complaint
Mediation only
Due process and mediation
Filing a complaint, due process, and mediation
Question 2- correct or incorrect?
1 point = correct
0 point = incorrect
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37. How often is the Individuals with Disabilities Education Act (IDEA) updated?
4 years
5 years
10 years
Not a specified number of years
Question 3- correct or incorrect?
1 point = correct
0 point = incorrect
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38. At the federal level, what age range does IDEA cover?
0-22 years old
3-14 years old
3-22 years old
3-26 years old
Question 4- correct or incorrect?
1 point = correct
0 point = incorrect
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39. What does the public school have to do with a private evaluation that the family pays for?
Accept it
Consider it
Reject it
Agree with part of it
Question 5- correct or incorrect?
1 point = correct
0 point = incorrect
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40. How long can students be suspended from school without receiving services?
0 days
5 days
10 days
No limit
Question 6- correct or incorrect?
1 point = correct
0 point = incorrect
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41. At the federal level, at what age does a transition plan need to be in place?
14 years old
16 years old
18 years old
22 years old
Question 7- correct or incorrect?
1 point = correct
0 point = incorrect
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42. Which option does not allow a school lawyer to be present unless there is a parent lawyer?
Resolution Meeting
Mediation
IEP meeting
Due process
Question 8- correct or incorrect?
1 point = correct
0 point = incorrect
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43. Which of the following terms are not in the Individuals with Disabilities Education Act (IDEA) law?
Mainstream
Inclusion
Least Restrictive Environment
Appropriate
Question 9- correct or incorrect?
1 point = correct
0 point = incorrect
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44. What kind of test happens before a behavioral intervention plan?
Functional Behavior Assessment
Evaluation
Reading Assessment
Teacher data
Question 10- correct or incorrect?
1 point = correct
0 point = incorrect
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45. Have you visited a lawmaker in-person?
Yes
No
How many visits have you made?
How many different lawmakers have you visited?
46. Have you used your videotaped clip? Have you shared it with anyone?
Yes
No
Who have you shared it with?
How many people have you shared it with?
How have you shared it (e.g., Facebook?)?
47. Have you e-mailed a lawmaker?
Yes
No
How many e-mails have you sent?
How many different lawmakers have you e-mailed?
48. Have you spoken to a group of individuals about special education?
Yes
No
How many people were in the group?
49. Have you written to the newspaper or social media about special education or updating the Individuals with Disabilities Education Act (IDEA)?
Yes
No
How many forms of media have you used?
50. Have you engaged in any other form of advocacy with lawmakers about special education?
Yes
No
What kind of advocacy with lawmakers and how many times?
51. Have you called your lawmaker about special education?
Yes
No
52. Do you have any other questions or anything you would like to add?
The total score on the self-determination scale
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An average score on the self-determination scale
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Give an example of a goal you are working on.
What are you doing to reach this goal?
How well are you doing in reaching this goal?