Informed consent: Biological embodiment and lived experiences of gender diverse individuals
Please read and complete the consent form below.
You are being asked to participate in a voluntary research study. The purpose of this study is to gather information to inform the design of an upcoming research project on gender identity, lived experiences, and how you feel those lived experiences impact your body. Participating in this study will involve participating in a individual interview for approximately 60-90 minutes. Risks related to this research include the potential to feel uncomfortable answering questions about your lived experiences in front of others, although we will ask all participants to maintain confidentiality. Benefits related to this research include informing the research team about your wants and concerns about the proposed research and, to the extent that you wish, have your voice heard and influence the way researchers design their work in a way that is more inclusive of the experience of more genders.
Title of Project: Biological Embodiment and lived experiences of gender diverse individuals
Responsible Principal Investigator: Dr. Kathryn Clancy, Department of Anthropology, University of Illinois, Urbana-Champaign
Research members: Meredith Wilson, Department of Anthropology, University of Illinois, Urbana-Champaign, Dr. Jenny Davis, Department of Anthropology, University of Illinois, Urbana-Champaign.
Purpose of Study:
These interviews will be used to inform the research team about what issues participants would like addressed and what questions participants would like answered by the overall research project. The researchers will gather information to inform the design of an upcoming research project on gender identity, lived experiences, and how those lived experiences impact the body. Information given in these interviews will help researchers identify important questions, concerns, and interests of the participants. The interviews will be about the relationships between gender identity, everyday lived experiences, structural barriers, navigating physical spaces, and social support. The purpose of the interviews is to help create a community based participatory research project that benefits participants as well as the researchers. One of the researchers, Meredith Wilson, will be asking you questions on these subjects and your experiences with them.
Procedures to be followed:
One of the researchers, Meredith Wilson, will ask you a number of questions about your experiences with regards to your gender identity, your everyday interactions and experiences, the structural systems you interact with, physical spaces, and social relationships. If you agree to participate, you will participate in an individual interview. After completing the consent form, you will be sent a copy of the interview questions the researchers have prepared so you can see them in advance, as well as a brief outline of what the possible research project might look like. You can answer the questions in any way that you wish and may add to the discussion any questions or topics that are relevant. You can skip or choose not to answer a question at any time. There are no right or wrong answers.
Individual interview will last approximately 60-90 minutes, and will be scheduled at a time that is most convenient to participants. Interviews will take place remotely, using the video conference system, Zoom. The interview will be recorded and transcribed by the researcher, Meredith Wilson, so there is a written form for research purposes. These files will be kept indefinitely. You will be sent a copy of your transcript so that you can provide any feedback on the interview data and decide if you want any or all interview data to be withdrawn. The contents of the interviews will be analyzed by the researchers and used to help create the research design and protocol for a longitudinal research project, which you will be invited to continue to participate in if you would like. The de-identified data (including quotes from interviews) may be used in academic research papers, published articles, conference presentations, and community presentations. Your information will not be used or distributed for future use, even if identifiers are removed.
Discomforts and risks:
The interview will be recorded for the purposes of transcription and analyses, but will not be played for anyone outside of the research group. At the end of this form you will be given the option to allow others to have access to your transcripts but no one will have access to your recordings outside of the research group.
The researcher will also be asking you questions concerning your personal experiences, which may cause discomfort. You have the right to refuse to answer any question at any time.
You have the right to withdraw your consent or stop participating at any time, including after the interview has been completed. If you want to withdraw any portion of the interview at any time, you are welcome to do so. Please contact the researcher, Meredith Wilson (firstname.lastname@example.org), with any questions or concerns.
Your participation will benefit current and future research about gender and lived experiences, and how these lived experiences might impact the body. To the extent that you wish and that you feel comfortable with, the information you give will be used to inform our research questions, procedures and final research project. To the extent that you want, your comments, thoughts, and voice will be incorporated into the research project and you will have an important role in creating and designing the research questions and procedures. The purpose of the interviews is to help create a community based participatory research project that benefits participants as well as the researchers and which you will be invited to be a part of. Copies of your recorded interview can be made and sent to you upon your request.
Statement of Confidentiality:
In general, we will not tell anyone any information about you. When this research is discussed or published, no one will know that you were in the study. However, laws and university rules might require us to disclose information about you, although this is rare. For example, if required by laws or University Policy, study information which identifies you and the consent form signed by you may be seen or copied by the following people or groups:
• The university committee and office that reviews and approves research studies, the Institutional Review Board (IRB) and Office for the Protection of Research Subjects;
• University and state auditors, and Departments of the university responsible for oversight of research;
• Federal government regulatory agencies such as the Office of Human Research Protections in the Department of Health and Human Services;
• The funding agencies of this study: None
Whom to contact:
If you have any questions regarding your participation in the study, please contact Meredith Wilson (email@example.com) before signing this form. If you have any questions or concerns during or after your participation please contact Meredith Wilson (484-686-2998, text, or firstname.lastname@example.org).
If you have questions about your rights as a participant in this study or any concerns or complaints, please contact the University of Illinois Institutional Review Board at (217) 333-2670 or via email at email@example.com.
Participants will be compensated with a $20 gift card at the beginning of the focus group.
Cost of participating:
There are no costs associated with participating in this research.
• I am 18 years of ago or older.
• I have read and understand the above consent form and voluntarily agree to participate in this study.
• I have read this paper about the study. I know the possible risks and benefits. I know that being in this study is voluntary. I choose to be in this study. I know that I can withdraw at any time. I have received, on the date signed, a copy of this document via email.